We are working to support PWS clinical trials

Clinical TRials

PWS Stronger Together are working with the pharmaceutical industry to support clinical trials in the UK. We will provide regular updates on progress of the trials.

Join our first webinar

Register for our first webinar, it will be held on the 9th of July at 7:30pm via Zoom. 

We will provide an overview of the clinical trial process and an introduction to the key PWS trials. 

Currently Recruiting in the UK

Compass PWS

Study for people 5-30 years old with Prader-Willi syndrome who have hyperphagia. 

The study is being done to test a drug called Carbetocin nasal spray (or ACP-101). Carbetocin nasal spray binds to oxytocin receptors with greater sensitivity than oxytocin, a naturally occurring hormone. In the study, Carbetocin nasal spray or placebo is inhaled through the nose three times each day. 

This study will last approximately 19 weeks. It will involve a maximum of 5 visits to the study centre, as well as up to 2 telephone or video calls.