PWS Awareness Month: 2026
One of the greatest strengths of Awareness Day 2026 was the variety of ways people chose to support PWS Stronger Togehter throught the month of May. Across the UK, schools, workplaces, families and residential settings embraced the campaign, helping to spread awareness in creative, meaningful and inclusive ways.
Every conversation, activity and shared experience helped raise awareness for Prader-Willi Syndrome.
Schools:
Schools played a fantastic role in raising awareness during PWS Awareness Month.
Pupils and staff wore orange to show their support, took part in colour runs, sponsored walks and movement challenges, organised non-uniform days and incorporated PWS awareness into assemblies and classroom discussions. Many schools encouraged pupils to learn about inclusion and kindness.
By taking part, schools not only raised valuable funds but also created opportunities for meaningful conversations about disability, inclusion and supporting others.
Families and Supporters:
Families supported PWS Awareness Month in many different ways.
Many wore orange shared awareness messages on social media, organised fundraising activities, displayed posters, spoke to friends, neighbours and colleagues about PWS, and celebrated the achievements of their loved ones with PWS.
Every contribution, no matter how big or small, helped raise awareness and showed the strength of the PWS community working together.
Workplaces:
Businesses and workplaces showed incredible support throughout May by getting involved in a variety of ways.
Many teams held wear orange days, lunchtime walks, office fitness challenges, bake sales and fundraising events, while others used internal newsletters and social media to share information about Prader-Willi Syndrome. Colleagues came together to raise awareness, support employees affected by rare conditions and demonstrate their commitment to inclusion and community engagement.
Their support helped raise awareness of PWS with people who may never have heard of it before.
PWS Residential Settings and Supported Living:
Residential services and supported living providers embraced Awareness Day by organising activities that encouraged movement, wellbeing and participation for people living with Prader-Willi Syndrome.
Residents enjoyed walks, games, exercise sessions, gardening, dancing and community outings, all tailored to individual abilities and interests. Many services also decorated their settings in orange, held awareness events and shared photographs celebrating the achievements of the people they support.
These activities highlighted the importance of accessible opportunities for physical activity while recognising the determination, confidence and achievements of individuals living with PWS.
PWS Awareness Month Highlights
PWS Awareness Month has been a powerful reminder of what our community can achieve together through the PWS Stronger Together Partnership. In 2025, supporters took part in Move It May, logging thousands of active minutes to raise awareness of Prader-Willi Syndrome, while 18 iconic UK landmarks lit up orange for the Glow Orange campaign and social media turned into a sea of orange with support from individuals, schools, and communities. The campaign also gained national media coverage and helped raise awareness with key decision-makers at a House of Lords event, alongside positive news that Soleno Therapeutics has submitted DCCR to the European Medicines Agency for review. In 2024, our first awareness month together saw the community virtually travel 2,500 kilometres and record over 59,000 Move It May minutes, while 39 national landmarks lit up orange and the campaign received widespread media coverage, helping us shine a light on PWS across the UK.
Looking Ahead
At PWS Stronger Together, we believe every May is a chance to amplify our community’s voices, educate the wider public and stand united for change. Thank you to every family, professional, donor and friend who supported us these last two years.
We will continue to keep working to ensure everyone with PWS gets the understanding and support they deserve.
