Awareness Month 2025

Last year you helped us raise over £14,000 for research into Ageing in PWS.

This year we are encouraging you to move any way you can for 15 minutes everyday in May.

Why 15?

Prader-Willi Syndrome is linked to missing or inactive genes on chromosome 15.

How to get involved?

Get involved by moving for 15 minutes a day. We've got some amazing videos to help get you started. There are 3 different types of videos showing different exercises for different ability levels. You can  pick which ones you would like to do, and of course you can choose your own movements.

Massive thank you to fitness guru Lucy Wynham-Read, Krazy Kay and Emma for recording these videos for us and for getting others involved.

Don't forget to share what you get up to with us using #MoveItMay #PWSStrongerTogether #GlowOrangeForPWS and of course tag us @PWS_Stronger_Together.

Lucy has created 2 playlists of videos, either high or low intensity so you can choose what suits you.

Head to the Move It May Library to  access the playlists and many more videos.

Help Us Understand Ageing in Prader-Willi Syndrome

As people with Prader-Willi syndrome (PWS) live longer, we urgently need to understand the health challenges they may face with age — including obesity, diabetes, heart disease, frailty, and possible early cognitive decline.

Vital research is needed to explore whether adults with PWS in the UK are experiencing premature ageing, and how best to support them as they grow older.

Your support will help fund this important work. Every donation brings us closer to answers — and better care. 

Text to donate

Text PWSTOGETHER to 70470 followed by the amount you would like to donate. e.g PWSTOGETHER10 for £10 or PWSTOGETHER20 for £20. 

Texts will cost the donation amount plus one standard network rate message, and you'll be opting into hearing more from us.

If you would like to donate but don't wish to hear more from us, please text PWSTOGETHERNOINFO followed by the amount you wish to donate.

See what we did in 2024!