Webinars

We strive to bring you the latest updates on clinical trials, research and developments in Prader-Willi syndrome, with webinars featuring experts, researchers and families sharing their knowledge and experiences.

The TEMPO Study

“With all the symptoms of PWS, excessive daytime sleepiness (EDS) wasn’t something we considered problematic—until we thought about the impact. When any of us are tired, life becomes harder.”

We’re joined by Ann from Harmony Biosciences to discuss their current Phase 3 trial, Liz from Leapcure, who are leading recruitment for the trial, and David, a parent who shares his lived experience of EDS.

To register for the trial, head to www.lpcur.com/tempo-pwsuk to learn more

Ard-101: H.E.R.O

We’re joined by Aardvark Therapeutics to discuss their upcoming UK trial sites for ARD-101, an investigational treatment being studied for its potential to reduce excessive hunger and food-seeking behaviours in people with Prader-Willi syndrome (PWS).

We’re also joined by Dr Evelien Gevers and Dr Guftar Shaikh, who explain the trial process and what participants can expect.

Further Updates

Watch our third webinar, where we are joined by Consynance, who provide an update on their Phase 2 CSTI500 trial. Soleno discusses their burden of disease survey supporting the DCCR trial, while Dr. Evelien Gevers explains what to expect when attending a trial screening. Lastly, Helen from FPWR UK shares updates on current trials in the UK.

Clinical Trial Updates

Watch our second webinar where we are joined by Harmony Biosciences, Aardvark, Soleno and Arcadia who update us on their clinical trials. 

What Are Clinical Trials?

Watch our first webinar, we covered everything you need to know about clinical trials.