PWS Awareness Day 2026

May 15th is Prader-Willi Syndrome Awareness Day in the UK.

On this day we’re asking schools to ‘Go orange for PWS’ and invite pupils to wear something orange,(or brightly coloured) instead of their uniform and donate £1 to provide vital funds for support and research for PWS.

PWS is a lifelong condition that affects physical health, cognition, and behaviour. One of the most distressing aspects is hyperphagia, an insatiable hunger that can lead to severe health complications.

Children and families with PWS can feel isolated and parents face a huge burden of care, coping with the complexity and demands of the syndrome alone. 

The condition is complex, requiring specialist medical care, structured support, and urgent advancements in treatment options.

We have created a range of educational resources, (see below) including assembly packs, so the day can be a learning opportunity for pupils, helping them understand the condition and how they can help to support people with PWS, both in your school community and beyond.d.

Resources for Schools

Text to donate

Fundraise

Text to donate

Text PWSTOGETHER to 70470 followed by the amount you would like to donate. e.g PWSTOGETHER10 for £10 or PWSTOGETHER20 for £20. 


Texts will cost the donation amount plus one standard network rate message, and you'll be opting into hearing more from us.


If you would like to donate but don't wish to hear more from us, please text PWSTOGETHERNOINFO followed by the amount you wish to donate.

Fundraise

You can create a campaign page on GiveStar, which allows you to create a fundraising page to fundraise for PWSA UK and FPWR UK.


GiveStar is available online via the link below or as an app, which can be downloaded on Android and iOS.